Wednesday, April 25, 2012

Exponential growth never felt so good

Last week, my oldest son went to the hospital. It wasn't very fun.

He had to get poked and prodded and had lots of bruises everywhere and was Generally Unhappy.

His immune system beat his platelets to a pulp. His levels dropped as low as 1,000 per microliter (typical numbers, according to the National Institutes of Health, are 150,000-400,000/mcL). Slowly, they climbed.

Just a wee bit at first, mind you. All the way to 2,000/mcL. And that was probably still within the margin of error for the test. So quite possibly, it didn't rise at all.

But then a little more. 4,000/mcL this time. Then 8,000/mcL. 

And then...26,000/mcL. This was a magic number. 

This meant that our boy could go home. Anything over 20,000 meant that the risk for spontaneous bleeding was reduced to the point where it was safe to keep him at home. 

So when we brought Bruiser home, we recorded the reunion with his little brother. It went a-something a-like a-this.

Wednesday, April 18, 2012

Idiopathic thrombocytopenia

Big words, those.

They really kind of suck.

They suck because they make my adorable little boy look like he went 12 rounds with a heavyweight and lost. I know he's making his tough face in this picture:

Untitled

But he's really a lover, not a fighter.

So what is idiopathic (also known as "immuno-") thrombocytopenia? In layman's terms, Benjamin's platelet count is down. Waaaaaaay down. Like, less than 1/25th of what it should be kinda-down. So what's the big deal about low platelets? Well, turns out you need those platelets to prevent minor things like bleeding. Platelets are the things in our bloodstream that form clots when you have a boo-boo. With levels as low as his are/were, he was at a risk for spontaneous bleeding in places where spontaneous bleeding is not welcome, thank you very much.

It all began when Mama noticed little, red, pinprick-sized dots on Benjamin's legs after a nap. The entire household had been fighting a cold the last week and he was enjoying a ragged, persistent cough. Mama thought a trip to the pediatrician would be prudent.

Mama is very wise.

Dr. Pediatrician realized that it wasn't a rash, but purpura. Say it with me now. "Purpuraaaa....." Purpura means "tiny little bruises that look like a connect-the-dot pattern all over your body." Benjamin didn't have a rash, but he had many, many wee bruises, some of which were forming big bruises. Dr. Pediatrician ordered some blood work and lo, Benjamin was found to be sorely lacking in the platelet department.

Soon we were off to Helen DeVos Children's Hospital.

DeVos Children's Hospital
Shiny, isn't it?


And here we sit. The doctors here believe this all started with the aforementioned cold that we've been contesting. Since everything else in Benjamin's blood work is hunky dory, the hematologists believe that Benjamin's immune system morphed into an ancient Viking warrior and went berserker-rage style on anything and everything in sight, including his platelets. Poor little guys didn't stand a chance.

He's on dose #2 of an IV therapy that is attempting to rein in the berserker immune system and allow the platelets to replenish themselves. After dose #1, his numbers went up. A titch. Not close to the magic number of platelets that will allow him sweet, sweet freedom, but it's going in the right direction. Dose #2 may be the magic bullet. Maybe.

Vikings-Clash
A re-enactment of Benjamin's immune system as represented by the Battle of Hastings.


In the meantime, Benjamin and Eli seem to both be enjoying heavy doses of undivided attention. If you are so inclined, a prayer, some positive energy, or kind thought, or whatever your spiritual currency may be, would be most welcome.

Tuesday, April 10, 2012

Red wine, almonds, and grown-up worries

Sunset Wine3  ice cream float:)

I was 24. Maybe 25. Definitely at an age when one's health was a low, low priority, far behind items like "playing video games" and "eating pizza" and "playing video games while eating pizza." I went to the doctor for a physical ahead of a minor knee surgery. The nurse drew some blood. I got a Scooby-Doo Band-Aid.

A few weeks later, my doctor called me with the results of my bloodwork. My cholesterol numbers came back in the range likely reserved for blue whales, but I was not concerned as I had not fasted before the blood draw. It was expected that my numbers would be sky-high. He would, however, like me to come back for another follow-up check. Just to be sure. And could it be in the next few days? And could you be sure to fast? Thanks. Another nurse, another Scooby-Doo Band-Aid.

The results were not much better. The fasting brought the numbers back down to Earth, but still way too high. Mt. Everest high. Not only was the total high, but the mix of good and bad cholesterol was all wack-a-doo wrong. The stuff that was supposed to be high was low. The purported low stuff was flaunting its highness.

almond harvest 2010

Since then, I've "tried" to keep my cholesterol numbers down. "Tried" in that I think about it whenever I eat pizza or get fast food. The total numbers always hovered slightly higher than they should have been, but no doctor ever put me on medication and always told me to eat healthily, get some exercise, blah de blah de blah.

Since we said Yes! to Michigan last summer, I got a new physical with a new doctor. Once again, the total numbers came back high with a bizarro mix of good and bad cholesterol. This time, Mr. Doctor Man gave me some actual advice. Raw almonds, he said. They can help get that mix of good and bad cholesterol back to where it should be. A small glass of red wine every other night will help with that too. Losing some weight would be good. Getting some exercise helps a ton. And simply watching what you eat can make a big ol' difference.

My doctor gave me a bunch of options to try. I am opting for www.myfitnesspal.com, a free website where you can enter your food and exercise for the day. It's no magic bullet, but it is interesting for me to actively track my meals every day. Kinda shocking too. I am paying closer attention to calories than ever before. I am learning which foods are good snack options and which are fat bombs. I am enjoying my small glass of red wine. Tonight's was a lovely malbec.

The doctor also gave me an ultimatum: re-check the cholesterol in four months and if there hasn't been a change (and assuming I did my part to lose the weight, eat healthy, etc.), it was time to talk about medications. I'm not anti-pharmaceuticals by any means, but I would sure like to avoid going on cholesterol medication before I'm 35 if I can help it.

I haven't lost any weight to speak of yet. But, hey, the journey is new and I'm still in the newlywed phase, so let's keep at it while the motivation is still there. After all, I want to be able to do this again.

Hamstrings E1

Think it will happen?